From
the article, BLACK MOTHER, BLACK FATHER, WHITE CHILD, WHO IS TO BLAME?,
it has been well established that albinism isn't a curse, neither is it
a taboo. Have that behind your mind.
If
this breaks your heart, I'm so sorry, but I just have to say it
anyways. There is NO cure for albinism. HOWEVER, there are things you
can do to help your child.
HERE IS WHAT YOU CAN DO. . .
Albinism
comes with a lot of other health issues, like, eye problems (e.g poor
vision, squinting eyes, nystagmus, etc), skin problems, and other
allergies might be involved too.
Due
to the lack of the melanin pigment in their skin, they are at increased
risk of sunburn and skin cancer, which are caused by sunlight damaging
the skin.
About
the eye problems, it is strongly advised that you take the child for
regular visit to an optician or ophthalmologist. They are in the best
position to examine and profer the best solutions to whatever the case
may be.
Also, make sure you prevent the child from going out when it is very hot and the sun is at its strongest (between 11am and 3pm). And you can always wear them clothes that cover up their skins well.
And most of all, LOVE YOUR CHILD. S/he needs so much of care, attention, and affection from you.
BUT YOU NEED TO HELP YOURSELF TOO. . .
If
you have a history of albinism in your family, or you have a child with
the condition, you are advised to go for genetic counselling.
Genetic counselling is a service that provides support, information and advice about genetic conditions.
Genetic
testing can be used to find out whether a person is carrying a specific
genetic mutation (altered gene) that causes a particular medical
condition.
An
adult or child diagnosed with albinism may also be referred for genetic
counselling to discuss how the condition was inherited and what the
chances are of passing the condition on.
RESOURCE: